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As an extension of the youth panel, a video has been created by Scott Stevens and Peggy Allen, featuring Lauren Allen, Jessica Turner, Jenny Wilson - young women with CFS. The purpose is to describe problems they have experienced as CFS students dealing with their schools. A 10-minute version was edited from the 43 minute complete film which was presented at the May meeting of the CFS Advisory Board in Washington D.C. We will preserve the longer version as well as the 10-minute presentation.

http://www.offerutah.org/CFSAC.htm

IF YOU HAVEN'T EXPLORED THE OFFER 2008 PATIENT CONFERENCE VIDEOS NOW ON OFFER'S WEBSITE, HERE ARE A COUPLE OF GREAT PRESENTATIONS TO START WITH:

"Living with Fibromyalgia" by Daneen Akers: http://www.offerutah.org/daneenakers.htm

"New Research and Biomarkers for FMS/CFS" by Kathleen Light, PhD: http://www.offerutah.org/kathleenlight.htm

"Your past is not your potential. In any hour you can choose to liberate the future."

Author: Marilyn Ferguson

IF YOU HAVEN'T CHECKED OUT THE NEW OFFER WEBSITE YOU'RE IN FOR A TREAT! IT HAS ADDED NEW INFORMATION AND LOTS OF VIDEOS FROM OFFER'S CONFERENCES AND EDUCATION MEETINGS!

Go to: http://www.offerutah.org/index.htm

FORWARD OFFER E-NEWS TO A FRIEND!

You can notify your friends to sign up for the E-news by forwarding this email or send them the following link: http://www.offerutah.org/enews%20signup.htm

THE NATIONAL FIBROMYALGIA ASSOCIATION HAS ESTABLISHED A HEALTHCAREPROVIDER INFORMATION PAGE.

Several Utah doctors and others in the Intermountain area have been listed. To see the list, it's necessary to register with The National Fibromyalgia Association, but it's free of charge. Here is the address: http://www.fmaware.org/site/PageServer?pagename=resources_hcProviderDirectory

FIBROMYALIGA TREATMENT PROGRAM

Researchers in the Department of Anesthesiology at The University of Utah are seeking individuals interested in participating in a clinical study to evaluate rehabilitation programs for treating Fibromyalgia.

If you:

* Have been diagnosed with Fibromyalgia Syndrome

* Are between 21 and 65 years of age

* Do not exercise regularly ( less than 30 minutes per week)

You may be eligible for this study. This study includes evaluations and 10 consecutive weekly, 2 ½ hour treatment sessions. All evaluations and treatments are at no cost to you.

If you are interested, please call The Pain Research Center at 801-585-7697 or
visit our website at: www.painresearch.utah.edu/clinical

Please help Break The Chain On Pain

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"When the archer misses the mark, he turns and looks for the fault within himself. Failure to hit the bull's eye is never the fault of the target. To improve your aim - improve yourself."

Author: Gilbert Arland

IN THE NEWS LINKS

Understanding Fibromyalgia: Lessons from the Broader Pain Research Community
David A. Williams, Daniel J. Clauw

Abstract

Fibromyalgia (FM) is a chronic pain condition marked by centrally mediated augmentation of pain and sensory processes. Skepticism has marked the history of this condition, but more recent study has identified neurobiological underpinnings supporting many of the symptoms associated with this condition. Early research in FM had unprecedented latitude within the rheumatology community to borrow heavily from theory and methods being applied in chronic pain research more generally. These insights facilitated rapid advances in FM research, not the least of which was the abandonment of a peripheral focus in favor of studying central mechanisms associated with central augmentation. Currently, rapid-paced discovery is taking place in FM genetics, patient assessment, new therapeutic targets, and novel methods of treatment delivery. Such insights are not likely to be limited in application just to FM and could have relevance to the broader field of pain research as well.

Perspective

This manuscript reviews the history of FM and its diagnosis, evidence supporting central augmentation of pain in FM, potential mechanisms of central augmentation, current approaches to integrated care of FM, and areas of active collaboration between FM research and other chronic pain conditions.

See article at: http://www.jpain.org/article/S1526-5900%2809%2900548-3/abstract

Cardiac Function fluctuates during exacerbation and remission in young adults with chronica fatigue syndrome and "small heart"
Miwa K., Fugita M.

Department of Internal Medicine, Nanto Family and Community Medical Center, 577 Matsubara, Nanto, Toyama 939-1518, Japan.

See article at: http://www.ncbi.nlm.nih.gov/pubmed/19632517

What is chronic fatigue syndrome?

Times Leader Features

May 3, 2009

See article at: http://www.timesleader.com/features/What_is_chronic_fatigue_syndrome__04-28-2009.html

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"The forces you are struggling with, that you feel are holding you back - are illusions. They are not real - they never have been. See only the good that you desire in your mind." Author: Bob Proctor

INFO-LINKS

Develop Coping Skills for Living With Fibromyalgia

Improve Your Life & Your Symptoms

By Adrienne Dellwo, About.com

Updated: February 28, 2009

See article at: http://chronicfatigue.about.com/od/copingwithfmscfs/a/copingskills.htm

Chronic Fatigue Syndrome: The Basics

By: Lara Endreszl

Published: Sunday, 28 December 2008 http://www.healthnews.com/family-health/chronic-fatigue-syndrome-the-basics-2346.html

Medline Plus: Fibromyalgia Tutorial

Click here

Check out this Website for Men with Fibromyalgia

Here's a great site for Men with Fibromyalgia. Spouses or SO's of Men with Fibromyalgia are also welcome. Very interesting. Click here

OFFERUTAH.ORG Announces New Discussion Board!

OFFER is excited to announce the launch of our new discussion board. This discussion board is open to anyone and will provide a forum for those who want to share their journey with others who are living with CFS and/or FMS. If you would like to join the forum, just go to OFFER's website, http://www.offerutah.org/ and click on the 'Discussion Board' button in the side menu. Just follow the instructions to register. If you have questions, click on 'FAQ' or email the administrator.

Offer's Website

Visit OFFER's web site for additional resources to important health information and CFS/FM research studies at: http://www.offerutah.org under Resources

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E-NEWS SUBSCRIPTIONS

Feel free to forward this email to anyone who might be interested. To start your subscription to this free newsletter, send your request to:

offerregistration@yahoo.com,

-or- fill out the online form on our website at the following link:

http://offerutah.org/enews%20signup.htm

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You may unsubscribe at anytime by clicking the link at the bottom of the E-news. At no time will OFFER ever sell or give you email address or any other personal information to anyone.

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"Every achiever that I have ever met says, "My life turned around when I began to believe in me."
Author: Dr. Robert Schuller

Please Note: the inclusion of information in this newsletter does not constitute or imply endorsement by OFFER or the Arthritis Foundation Utah/Idaho Chapter. Please consult your medical care provider before using any medication or therapy.