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 E-NEWS MARCH 2009 
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OFFER EDUCATION MEETING
 
"Lessons from Mindfulness Meditation & FM/CFS Research"
  
Dawn Fleming Jackson, PhD
 
 
Wednesday, March 4th at 7:00 p.m.
 

Location: 
Council Chambers, Salt Lake County Complex North Building
2001 South State Street, Salt Lake City, UT. 
(Park free at the northeast corner of the complex)

OFFER's Education Meetings are usually the first Wednesday of each month at 7:00 p.m.,
and are free and open to everyone. 
 
To view the 2009 Education Meeting Schedule, click here.
 
Additional Education Meetings will be uploaded to OFFER's website
within the next week or so.

 
 
 
FOUR DAYS OR FOUR DOLLARS FOR CHRONIC FATIGUE SYNDROME (CFS)!
 
Due to the difficult economic conditions everyone is experiencing, the International Association for CFS/ME (the IACFS/ME) has not received the amount of sponsorship money it was counting on for its 9th International Conference in March and is reaching out for donations.  As we learned from the Obama compaign, if large numbers of people make even small donations, it makes a huge difference.  If you devote FOUR DAYS to attend the IACFS/ME Research & Clinical Conference in Reno, Nevada, March 12-15, 2009, or donate FOUR DOLLARS (or more if you can afford it), it will help support the critical work this organization is doing on our behalf.  Either way, as a patient advocate, you have the opportunity to be an important participant in this conference to advance the science of CFS.  No donation is too small or too large: $4  $14  $44  $444 . . . To make a tax-deductible donation, or to learn more about the conference, go to: http://www.iacfsme.org.  CFS patients are counting on your help and thank you for your support.
 
OFFER
Lucinda Bateman, M.D., OFFER Board Chairperson and Executive Director
 

 
9th INTERNATIONAL IACFS/ME CONFERENCE
 
If you are a patient, caregiver and or an advocate, you will not want to miss this conference offering talks by internationally known researchers, physicians, legal experts and patient advocates. Every presentation has been designed to provide participants with knowledge and empowerment to face the difficult health issues persons with CFS/FM encounter daily.
 
Patient Session: March 12, 2009 
Professional Session: March 13-15, 2009
 
Location: Peppermill Resort, Reno, Nevada 
 
Go to the OFFER Website to view the brochures at http://www.offerutah.org or for complete information on the entire IACFS/ME Conference go to: http://www.iacfsme.org.

 


OFFER 2008 PATIENT CONFERENCE VIDEOS NOW ONLINE!
 
Thanks to Scott Stevens, an OFFER Board Member and Executive Committee Member, OFFER's September 2008 Patient Conference presentations are now available for viewing on the OFFER website.  Please click on the following link to view these informative presentations: http://www.offerutah.org/2008%20conference.htm
 
OFFER 2007 Conference videos should be uploaded and ready to view within the next couple of days.
 


 
"People who consider themselves victims of their circumstances will always remain victims unless they develop a greater vision for their lives."  
Author: Stedman Graham

 
OFFER WEBSITE HAS A NEW LOOK AND FEEL!  CHECK IT OUT!

Thanks again to months of effort on the part of our webmaster, Scott Stevens, for an all new OFFER website.  Scott has added numerous video presentations from previous OFFER Conferences and OFFER EDUCATION MEETINGS plus much more.  Please click on the following link and let OFFER know how you like our new look (and sounds):
http://www.offerutah.org/index.htm


 
FORWARD OFFER E-NEWS TO A FRIEND!
 
You can notify your friends to sign up for the E-news by forwarding this email or send them the following link: http://www.offerutah.org/enews%20signup.htm
   
  

 
THE NATIONAL FIBROMYALGIA ASSOCIATION HAS ESTABLISHED A HEALTHCAREPROVIDER INFORMATION PAGE.   
 
Several Utah doctors and others in the Intermountain area have been listed. To see the list, it's necessary to register with The National Fibromyalgia Association, but it's free of charge.  Here is the address: http://www.fmaware.org/site/PageServer?pagename=resources_hcProviderDirectory
 
 

 
FIBROMYALIGA TREATMENT PROGRAM
 
Researchers in the Department of Anesthesiology at The University of Utah are seeking individuals interested in participating in a clinical study to evaluate rehabilitation programs for treating Fibromyalgia.
 
If you:
*  Have been diagnosed with Fibromyalgia Syndrome
*  Are between 21 and 65 years of age
*  Do not exercise regularly ( less than 30 minutes per week)  
 
You may be eligible for this study.  This study includes evaluations and 10 consecutive weekly, 2 ½ hour treatment sessions.  All evaluations and treatments are at no cost to you. 
 
If you are interested, please call The Pain Research Center at 801-585-7697 or
visit our website at: www.painresearch.utah.edu/clinical
 
Please help Break The Chain On Pain 

 
"Most folks are about as happy as they make up their minds to be."  
Author: Abraham Lincoln

 
IN THE NEWS LINKS
  
Joint replacement patients with fibromyalgia show high levels of dissatisfaction postoperatively
By: Katrina Altersitz
Published online: February 28, 2009 
 
 
£730,000 for research into Chronic Fatigue Syndrome in children
Press release issued 27 February 2009
 
 
FDA delays Hemispherx drug vote
Philadelphia Business Journal  Friday, February 20, 2009- by John George
 
 
Impulse Control Disorder Behaviors Associated with Pramipexole Used to Treat Fibromyalgia – Source: Journal of Gambling Studies, Feb 25, 2009
by Andrew J Holman, MD
February 26, 2009

 
 
Pfizer ends 2 drug programs for fibromyalgia, anxiety
AHIP Solutions SmartBrief | 02/25/2009

 


"The significant problems we have cannot be solved at the same level of thinking with which we created them."  
Author: Albert Einstein

INFO-LINKS
 
Develop Coping Skills for Living With Fibromyalgia
Improve Your Life & Your Symptoms
By Adrienne Dellwo, About.com
Updated: February 28, 2009
 
Chronic Fatigue Syndrome: The Basics
By: Lara Endreszl
 
Medline Plus: Fibromyalgia Tutorial
 
Treatment for Fibromyalgia Overview
Teresa Kaldis, M.D. reviews the different treatment options.  Click here
 
Great ideas for youth/adults who have to deal with CFS and FM
A wonderful booklet written by a young lady in our community.  Click here
 
A New Study for Fibromyalgia Patients 
Dr. Lucinda Bateman is actively seeking Fibromyalgia patients, ages 18-70, to participate in clinical research studies of three investigational drugs for the treatment of Fibromyalgia.  If you are interested, call Dr. Bateman’s office (801-359-7400) and talk to Ali Allen, RN, research coordinator, or others on the research team, to learn more about the drug studies currently underway.  Qualified participants receive study-related physician visits, lab evaluations, and the investigational medication at no cost.

Check out this Website for Men with Fibromyalgia
Here's a great site for Men with Fibromyalgia.  Spouses or SO's of Men with Fibromyalgia are also welcome.  Very interesting.  Click here
 
OFFERUTAH.ORG Announces New Discussion Board!
OFFER is excited to announce the launch of our new discussion board.  This discussion board is open to anyone and will provide a forum for those who want to share their journey with others who are living with CFS and/or FMS.  If you would like to join the forum, just go to OFFER's website,  http://www.offerutah.org/ and click on the 'Discussion Board' button in the side menu.  Just follow the instructions to register.  If you have questions, click on 'FAQ' or email the administrator.
 
Offer's Website
Visit OFFER's web site for additional resources to important health information and CFS/FM research studies at: http://www.offerutah.org under Resources
 
 
 

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"People think I'm disciplined.  It is not discipline. It is devlotion.  There is a great difference."
Author:  Luciano Pavarotti


  Please Note: the inclusion of information in this newsletter does not constitute or imply endorsement by OFFER or the Arthritis Foundation Utah/Idaho Chapter. Please consult your medical care provider before using any medication or therapy.


Copyright 2007



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