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 E-NEWS OCTOBER 2009 
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OFFER EDUCATION MEETING
 
"Chiropractic: Balancing Neurology and Stimulating Vitality"
 
Mark Resetaritz, D.C.
 
Wednesday, October 7, 2009 at 7:00 p.m.
 

OFFER's Education Meetings are usually the first Wednesday of each month at 7:00 p.m.,
and are free and open to everyone. 
 
To view the 2009 Education Meeting Schedule, click here.
 
Additional Education Meetings will be uploaded to OFFER's website
within the next week or so.

 
 



IN THE NEWS LINKS
 
Nomination to Replace Five CFS Advisory Committee Members Whose Terms End in Jan 2010
September 25, 2009
See article at: http://www.prohealth.com/library/showarticle.cfm?libid=14884
 
 
Examining types of fatigue among individuals with ME/CFS - Source: Disability Studies Quarterly, 2009
By Leonard Jason, PhD et al.
August 25, 2009
 
Understanding Fibromyalgia:  Lessons from the Broader Pain Research Community
David A. Williams, Daniel J. Clauw
Abstract
Fibromyalgia (FM) is a chronic pain condition marked by centrally mediated augmentation of pain and sensory processes. Skepticism has marked the history of this condition, but more recent study has identified neurobiological underpinnings supporting many of the symptoms associated with this condition. Early research in FM had unprecedented latitude within the rheumatology community to borrow heavily from theory and methods being applied in chronic pain research more generally. These insights facilitated rapid advances in FM research, not the least of which was the abandonment of a peripheral focus in favor of studying central mechanisms associated with central augmentation. Currently, rapid-paced discovery is taking place in FM genetics, patient assessment, new therapeutic targets, and novel methods of treatment delivery. Such insights are not likely to be limited in application just to FM and could have relevance to the broader field of pain research as well.
 
Perspective
This manuscript reviews the history of FM and its diagnosis, evidence supporting central augmentation of pain in FM, potential mechanisms of central augmentation, current approaches to integrated care of FM, and areas of active collaboration between FM research and other chronic pain conditions.  
 
Cardiac Function fluctuates during exacerbation and remission in young adults with chronica fatigue syndrome and "small heart"
Miwa K., Fugita M.
Department of Internal Medicine, Nanto Family and Community Medical Center, 577 Matsubara, Nanto, Toyama 939-1518, Japan.
 
 
Update: Ampligen for Chronic Fatigue Syndrome
Wednesday, September 23, 2009
 
 


"The cave you most fear to enter contains the greatest treasure."
Author: Joseph Campbell

 
INFO-LINKS
 
The National Fibromyalgia Association has established a healthcare provider information page   
Several Utah doctors and others in the Intermountain area have been listed. To see the list, it's necessary to register with The National Fibromyalgia Association, but it's free of charge.  Here is the address: http://www.fmaware.org/site/PageServer?pagename=resources_hcProviderDirectory
 
Develop Coping Skills for Living With Fibromyalgia
Improve Your Life & Your Symptoms
By Adrienne Dellwo, About.com
Updated: February 28, 2009
 
Chronic Fatigue Syndrome: The Basics
By: Lara Endreszl
 
Medline Plus: Fibromyalgia Tutorial
 
Check out this Website for Men with Fibromyalgia
Here's a great site for Men with Fibromyalgia.  Spouses or SO's of Men with Fibromyalgia are also welcome.  Very interesting.  Click here
 
OFFERUTAH.ORG newly designed Support Board!
Over the last year, we have had a "message Board" for patients and caregivers to share ideas on how to cope with CFS/ME and Fibromyalgia or to discuss how they are feeling.  Over time, most of us have lost the ties to loved ones and friends we once had.  This "Support Board" is intended to be a place to find new friends who understand our illnesses.  It should also be a place to pick up good ideas on how to cope with our illnesses.
 
Our previous board was regularly attacked by spammers.  This new board has great security features to keep "spammers" out.  Take a look and see what you think.
 
To join in, just go to OFFER's website, http://www.offerutah.org/index.htm and click on the 'Support Board' button in the side menu.  Just follow the instructions to register.  If you have questions, click on 'FAQ' or email the administrator.

 
Offer's Website
Visit OFFER's web site for additional resources to important health information and CFS/FM research studies at: http://www.offerutah.org under Resources
 
 
 

 
"I've failed over and over and over again in my life and that is why I succeed."  
Author: Michael Jordan


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PARTICIPANTS WANTED FOR STUDY OF CHRONIC FATIGUE
 
Individuals who have had severe, unexplained fatigue for at least six months and who have no serious abnormalities on medical tests are wanted for a study of chronic fatigue.   Patients who qualify for the study will be asked to complete three questionnaires over a six month period.  Participating in the study will not alter the treatment that your physician gives you.  The purpose of the study is to evaluate whether patients treated by certain types of physicians improve faster than patients treated by other types of physicians.  
 
If you may be interested in participating in this study, please contact the study coordinator, Kathleen O’Connor at (801) 587-4741. For more information email kathleen.oconnor@hci.utah.edu or visit our website at:


 


FIBROMYALIGA TREATMENT PROGRAM
 
Researchers in the Department of Anesthesiology at The University of Utah are seeking individuals interested in participating in a clinical study to evaluate rehabilitation programs for treating Fibromyalgia.
 
If you:
*  Have been diagnosed with Fibromyalgia Syndrome
*  Are between 21 and 65 years of age
*  Do not exercise regularly ( less than 30 minutes per week)  
 
You may be eligible for this study.  This study includes evaluations and 10 consecutive weekly, 2 ½ hour treatment sessions.  All evaluations and treatments are at no cost to you. 
 
If you are interested, please call The Pain Research Center at 801-585-7697 or
visit our website at: www.painresearch.utah.edu/clinical
 
Please help Break The Chain On Pain 
 

 
NEW OFFER YOUTH GROUP AND YOUTH INFORMATION SITE!
 
As an extension of the youth panel, a video has been created by Scott Stevens and Peggy Allen, featuring Lauren Allen, Jessica Turner, Jenny Wilson - young women with CFS.  The purpose is to describe problems they have experienced as CFS students dealing with their schools.  A 10-minute version was edited from the 43 minute complete film which was presented at the May meeting of the CFS Advisory Board in Washington D.C.  We will preserve the longer version as well as the 10-minute presentation.
 
 

 
"You cannot do a kindness too soon, for you never know how soon it will be too late."  
Author: Ralph Waldo Emerson
 
IF YOU HAVEN'T EXPLORED THE OFFER 2008 PATIENT CONFERENCE VIDEOS NOW ON OFFER'S WEBSITE, HERE ARE A COUPLE OF GREAT PRESENTATIONS TO START WITH:
 
"Living with Fibromyalgia" by Daneen Akers: http://www.offerutah.org/daneenakers.htm
 
"New Research and Biomarkers for FMS/CFS" by Kathleen Light, PhD: http://www.offerutah.org/kathleenlight.htm
 


 
IF YOU HAVEN'T CHECKED OUT THE NEW OFFER WEBSITE YOU'RE IN FOR A TREAT!  IT HAS ADDED NEW INFORMATION AND LOTS OF VIDEOS FROM OFFER'S CONFERENCES AND EDUCATION MEETINGS!

 
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"The great pleasure in life is doing what people say you cannot do."
Author:  Walter Bagehot


  Please Note: the inclusion of information in this newsletter does not constitute or imply endorsement by OFFER. Please consult your medical care provider before using any medication or therapy. 


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